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ALS: Not Just About Motor Neurons Anymore
Motor neurons are lost in ALS, but new evidence shows they don’t die without significant help from their neighboring cells. These neighbors may be easier to target with therapies than…
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To Cath or Not to Cath?
When ALS weakened Jane Cheng’s mother, her caregivers found it took a great deal of strength to help her transfer on and off the toilet. “I twisted my ankle a few times…
Tags: Caregiving, Healthcare, Resources
ALS Research Poison Dirt
“Toxic desert dust” may be why military personnel serving in the 1990-1991 Gulf War experienced abnormally high rates of ALS, new findings suggest.
Tags: Healthcare, Research
Water-Contamination Link to ALS Tenuous Without More Data
Recently, media outlets reported a possible link between developing ALS and living near Lake Mascoma in Western New Hampshire. The Union Leader in New Hampshire and other news outlets indicated that the…
Tags: Healthcare, Research
ALS: A Vicious Cycle
When ALS-affected nerve cells lose function, their closest neighbors can’t protect them.
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504 Plans What Parents Should Know
Some students with muscle diseases have IEPs (Individualized Education Plans) and some have 504 plans. What’s the difference? Should parents be concerned if the school says their child doesn’t qualify for an…
NIV Masks: Finding the One That’s Just Right
Once upon a time, there was a young woman named Goldilocks. She went to visit her MDA clinic for an appointment with a respiratory therapist (RT) because her doctor said she needed…
Tags: Healthcare, MDA Care Centers, Research
All Choked Up
It’s not uncommon in ALS for something unexpectedly and abruptly to aggravate your airway and throw you into a choking fit. I know from personal experience that these choking, gagging,…
Tags: Caregiving, Healthcare
Gulf War Vets More Likely to Get ALS
A government-supported research team announced in the Sept. 23 issue of the journal Neurology that having served in southwest Asia during the Gulf War significantly increases the risk of later…
Tags: Healthcare, Research