Archives




Featured Article | Independence, Personal Stories

Pushing Limits

A hiker proves she is stronger than FSHD by taking on the toughest trek of her life

Tags: From Where I Sit, Staying Active


Featured Article | Science + Research

Ongoing Clinical Trials

Updates on some of the most promising studies

Tags: Clinical Trials, Drug Approval, Drug Development, Featured Content, Gene Therapy, MDA Clinical and Scientific Conference, Research


Featured Article | Science + Research

Guiding Treatment for Myotonic Dystrophy

A Q&A with neurologist Tetsuo Ashizawa, M.D.

Tags: Gene Therapy, Research, Spotlight


Featured Article | Science + Research

From Drug Discovery to Delivery

FDA Panel (left to right): Janet Woodcock, MD, FDA Center for Drug Evaluation and Research, and Peter Marks, MD, PhD, FDA Center for Biologics Evaluation and Research. FDA directors and…

Tags: Drug Development, Gene Therapy, MDA Clinical and Scientific Conference, Web Exclusive


Featured Article | Advocacy, Health

The Case for Newborn Screening

Identifying neuromuscular diseases at birth can yield great benefits but faces great challenges

Tags: Advocacy Updates, Featured Content, MDA Clinical and Scientific Conference, Newborn Screening


Featured Article | Independence, Lifestyle

Care Across the Lifespan

Addressing sensitive topics contributes to higher quality of life

Tags: Featured Content, Healthcare, MDA Clinical and Scientific Conference, Transitions


Blog Post | News

Bennett Foundation Donates $500,000 to Orange, Calif., MDA Summer Camp

July 9 at the Irvine Ranch Outdoor Education Center in Orange, Calif., home to one of MDA’s nationwide Summer Camp programs, was a very good day. Campers and MDA staffers…

Tags: Summer Camp


Blog Post | News, Science + Research

2109 Clinical & Scientific Conference Highlight: Healthcare Technology Moves Out of the Clinic, Into the Pocket

Computers, laptops, tablets, and smartphones have become ubiquitous features of our daily lives — but not of our healthcare. At least, not yet. But a group of physicians at MDA’s…

Tags: Clinical Trials, MDA Clinical and Scientific Conference, Research, Technology


Blog Post | News, Science + Research

2019 Clinical & Scientific Conference Highlight: What’s New in Neuromuscular Diseases?

At the 2019 MDA Clinical & Scientific Conference, one scientific session of interest centered on what’s new in neuromuscular diseases (NMDs). In this session, presenting scientists discussed progress in therapy…

Tags: Clinical Trials, Drug Development, MDA Clinical and Scientific Conference, Research


Blog Post | News, Science + Research

2019 Clinical & Scientific Conference Highlight: Neuromuscular Disease Impacts Cognition and Behavior, Too

Healthcare providers who work with patients diagnosed with neuromuscular disease (NMD) must consider the impact of these diseases on cognition and behavior, said presenters at a 2019 Clinical & Scientific…

Tags: Healthcare, MDA Clinical and Scientific Conference, Mental Health, Research