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Featured Article | Advocacy, Inclusion

504 Plans What Parents Should Know

Some students with muscle diseases have IEPs (Individualized Education Plans) and some have 504 plans. What’s the difference? Should parents be concerned if the school says their child doesn’t qualify for an…

Tags: Education, Parenting


Blog Post | Health, Lifestyle, Personal Stories

NIV Masks: Finding the One That’s Just Right

Once upon a time, there was a young woman named Goldilocks. She went to visit her MDA clinic for an appointment with a respiratory therapist (RT) because her doctor said she needed…

Tags: Healthcare, MDA Care Centers, Research


Featured Article | Independence

Canes Crutches and Walkers

A triple option for ambulation

Tags: Equipment and Assistive Devices, Resources


Blog Post | Health, Independence, Lifestyle, Personal Stories

All Choked Up

It’s not uncommon in ALS for something unexpectedly and abruptly to aggravate your airway and throw you into a choking fit. I know from personal experience that these choking, gagging,…

Tags: Caregiving, Healthcare


Blog Post | Health, Personal Stories, Science + Research

Gulf War Vets More Likely to Get ALS

A government-supported research team announced in the Sept. 23 issue of the journal Neurology that having served in southwest Asia during the Gulf War significantly increases the risk of later…

Tags: Healthcare, Research


Blog Post | Health, Lifestyle, Personal Stories

Take Falls Seriously to Prevent Further Injuries

There was a period of time last year when Ira Anderson was “falling ridiculously all over the place.” Reluctantly, he agreed to get a cane and found one with an…

Tags: Education, Healthcare


Blog Post | Health, Personal Stories, Science + Research

Bats and Nuts Yield Environmental Clue to ALS on Guam

High rates of ALS on Guam may have been caused by the native people’s predilection for eating bats, according to a new theory. Two researchers proposed the theory based partly…

Tags: Healthcare, Research


Featured Article | Science + Research

Simply Stated: Oxidative Stress

Every day we’re bombarded with information about foods that contain “antioxidants” and supplements that block “free radicals.” But where do free radicals come from and why should we block them?…

Tags: Simply Stated