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Featured Article | Health, Independence

Make a Smooth Transition From Pediatric to Adult Healthcare

What you need to know to make a smooth transition from pediatric to adult healthcare for muscular dystrophy and other neuromuscular diseases.

Tags: Featured Content, Healthcare, MDA Care Centers, Transitions, Young Adults


Blog Post | Advocacy, Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories, Science + Research

Wings over Wall Street Celebrates 24 Years and Names Brooke Eby as Honoree

For over 70 years, the Muscular Dystrophy Association has led the way in accelerating research for ALS, also known as Lou Gehrig’s disease. Over that time, MDA has dedicated over…

Tags: Caregiving, Education, Healthcare, Innovation, Relationships, Research, Research Advances, Resources


Blog Post | Independence, Lifestyle

Holiday Hosting Hacks for Thanksgiving Dinner

The Holiday season, especially Thanksgiving, is synonymous with the gathering of friends and family to share a special meal. Whether hosting dinner or creating a dish to bring to a…

Tags: Community


Blog Post | Health, Science + Research

Clinical Trial Alert: Phase 3 Study of Brepocitinib in Adults with Dermatomyositis

Researchers at Priovant Therapeutics areΒ seeking adults with dermatomyositis to participate in a phase 3 clinical trial (VALOR) to evaluate the safety and effectiveness of the investigational therapy brepocitinib to treat…

Tags: Clinical Trial Alert, Clinical Trials, Drug Development, Healthcare, Innovation, Research, Research Advances


Blog Post | Advocacy, Get Involved, Health, Inclusion, Independence, Lifestyle

MDA Collaborates to Present the Inaugural Becker Education and Engagement Day

MDA is excited to collaborate and join the inaugural Becker Education and Engagement Day (BEED) this December 2nd. The free, in-person event aims to bring individuals and families together to…

Tags: Community, Education, Healthcare, Innovation, MDA Care Centers, MDA Resource Center, Relationships, Research Advances, Resources, Young Adults


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Episode 35- Bridging the Gap Between Intention, Action, and Community Inclusion

In this Quest Podcast episode, we chat with the Director of Marketing and Communications atΒ Idealist.org, President for New York Women in Communications (NYWICI) and host of the NYWICIΒ WomenHeard Changemakers podcast.…

Tags: Community, Employment, Mental Health, Relationships, Resources, Staying Active, Volunteers


Blog Post | Lifestyle, Personal Stories

Letters From Leah: A Note of Gratitude

Dear World, Hello, welcome back to β€œLetters from Leah”. As I reflect, I have a lot to be thankful for due to being blessed throughout my life. I am writing…

Tags: Ambassadors, Letters From Leah, Relationships, Young Adults


Blog Post | Advocacy, Get Involved, Independence, Lifestyle, Personal Stories

Embracing the Power of Giving and Gratitude: Ira’s Journey with MDA

As the holiday season approaches, we are reminded of the spirit of giving and the importance of gratitude. It is a time when we come together to support organizations that…

Tags: Community, Healthcare, Innovation, Ira, MDA Care Centers, Research, Resources, Summer Camp, Young Adults


Blog Post | Independence, Lifestyle, News

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: College, Community, Drug Approval, Education, Employment, In Case You Missed It


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Why I am Grateful for My Caregivers

Jennifer Cruz and her mother Jennifer Cruz is 36 years old and lives in Broken Arrow, OK. Jennifer has Ullrich congenital muscular dystrophy and uses a wheelchair and noninvasive ventilation.…

Tags: Accessible Air Travel, Ambassador Guest Blog, Ambassadors, Caregiving, Relationships