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Featured Article | Health, Science + Research

3 Steps to Find Reliable Information on Neuromuscular Disease Research

How to search the internet to find reliable information about neuromuscular diseases and the latest research.

Tags: Clinical Trials, Community Education, Featured Content, Gene Therapy, Genetic Testing, Grants, MDA Engage, MDA Resource Center, MOVR, Research, Resources


Featured Article | Health

How to Speak Up for Your Healthcare Needs in Hospitals and Doctors’ Offices

Knowing how to effectively communicate your wishes and needs to doctors in offices and hospitals results in better healthcare.

Tags: Featured Content, Healthcare, MDA Care Centers, National Connections Program, Relationships


Featured Article | Advocacy, Inclusion, News

The Best Way to Prepare People With Disabilities and Their Communities for Natural Disasters

With natural disasters on the rise, here’s how people with disabilities can prepare and increase awareness of their needs in their communities.

Tags: Community, Featured Content


Featured Article | Advocacy

MDA On the Road Launches at High-Impact Conferences to Advocate for Neuromuscular Community

MDA On the Road launches a journey to advocate for the neuromuscular disease community with appearances at high-impact conferences.

Tags: Access MDA, Advocacy Updates, Community, Summer Camp, Young Adults


Blog Post | Get Involved

How Calls from the MDA Family Support Team Make a Difference

When you join MDA, you become a member of an active, broader, and supported neuromuscular community. One way that MDA stays connected with our families through every step of their…

Tags: Community, MDA Care Centers, Resources


Blog Post | Independence, Lifestyle

How Protective and Advocacy Organizations Help People with Disabilities

Protective and advocacy organizations offer legal support people for with disabilities to exercise their rights.

Tags: Employment, Featured Content, Resources


Blog Post | Research, Science + Research

Clinical Trial Alert: Phase 2 Study of Vamorolone in Adults with BMD

Researchers at the University of Pittsburgh areΒ seeking adults living with Becker muscular dystrophy (BMD) to participate in a phase 2 clinical trial to evaluate the safety and efficacy of vamorolone…

Tags: Clinical Trial Alert


Blog Post | Research, Science + Research

Research Study Alert: Natural History Study in Adults Receiving Treatment for SMA

Researchers at Ohio State University areΒ seeking adults living withΒ spinal muscular atrophy (SMA) to participate in a 12-month natural history study. The objective of this observational study is to look at…

Tags: Research Study Alert


Blog Post | Research, Science + Research

Research Study Alert: Cognition Study in Boys with DMD and their Biological Mothers

Researchers at Virginia Commonwealth University areΒ seeking boys living withΒ Duchenne muscular dystrophy (DMD), as well their biological mothers who may or may not carry DMD-causing genetic variants, to participate in a…

Tags: Research Study Alert


Blog Post | Independence, Personal Stories

Quest for Success: Dr. Chris Rosa

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: β€œQuest for Success”. Success looks…

Tags: College, Education, Employment, Personal Care Attendants, Quest for Success, Staying Active