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International Day of Persons with Disabilities: The State of Neuromuscular Disease Advocacy Around the World
Learn how international organizations advocate for neuromuscular diseases around the world.
Tags: Featured Content
Quest for Success: Ira Walker
As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to present our 2022 blog series: βQuest for Successβ. Success looks…
What You Should Know About Target Health Numbers
How neuromuscular disease affects target health numbers: blood pressure, blood sugar, cholesterol, and BMI.
Tags: Featured Content, Healthcare
How to Make STEM Education Accessible for All: Students Weigh In
As the need for increased diversity in STEM education and careers gains more attention, the Smithsonian Science Education Center (SSEC) is leading the way in making meaningful change in our…
Tags: Education, Year of Independence
What I am Grateful for This Thanksgiving
Chris Anselmo, MDA’s Director of Market Intelligence Thanksgiving has always been a time of reflection for me. It is a time to come up for air and take stock of…
Tags: Community
Research Study Alert: Survey Examining Urinary and Gastrointestinal Symptoms Associated with SMA
Researchers in the Division of Pediatric Neurology at the University of Iowa areΒ seeking people at least four years of age who are living withΒ spinal muscular atrophy (SMA), as well as…
Tags: Research Study Alert
Q&A: Understanding Bethlem Myopathy
Bethlem myopathy, also called Bethlem muscular dystrophy, is a rare disease affecting skeletal muscles and connective tissue. Considered a type of congenital muscular dystrophy, it was initially recognized in the…
Top 4 Reader Photos of 2022
Thank you to everybody who entered the 2022 Quest Reader Photo Contest. We received so many great photos from all around the neuromuscular disease community and are excited to share…
Tags: Lasting Impression, Parenting, Relationships
Finding Creative Ways to Manage Accessibility Challenges
I was once on the go all the time, but in recent years, I have found myself slowing down and trying to pace myself. I do not push the limits…
Tags: Community, From Where I Sit
When Will Air Travel for Passengers in Wheelchairs Get Better?
In September 2022, American Airlines stranded passenger Xavi Santiago for more than five hours at the Orlando airport after misplacing their power wheelchair. One month earlier, Lufthansa stopped Rhode Island…