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Blog Post | Advocacy, News

International Day of Persons with Disabilities: The State of Neuromuscular Disease Advocacy Around the World

Learn how international organizations advocate for neuromuscular diseases around the world.

Tags: Featured Content


Blog Post | Independence, Personal Stories

Quest for Success: Ira Walker

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to present our 2022 blog series: β€œQuest for Success”. Success looks…

Tags: College, Community, Education, Employment, Ira, Quest for Success, Year of Independence


Blog Post | Health

What You Should Know About Target Health Numbers

How neuromuscular disease affects target health numbers: blood pressure, blood sugar, cholesterol, and BMI.

Tags: Featured Content, Healthcare


Blog Post | Inclusion, Lifestyle

How to Make STEM Education Accessible for All: Students Weigh In

As the need for increased diversity in STEM education and careers gains more attention, the Smithsonian Science Education Center (SSEC) is leading the way in making meaningful change in our…

Tags: Education, Year of Independence


Blog Post | Lifestyle

What I am Grateful for This Thanksgiving

Chris Anselmo, MDA’s Director of Market Intelligence Thanksgiving has always been a time of reflection for me. It is a time to come up for air and take stock of…

Tags: Community


Blog Post | Research, Science + Research

Research Study Alert: Survey Examining Urinary and Gastrointestinal Symptoms Associated with SMA

Researchers in the Division of Pediatric Neurology at the University of Iowa areΒ seeking people at least four years of age who are living withΒ spinal muscular atrophy (SMA), as well as…

Tags: Research Study Alert


Featured Article | Finding a Diagnosis, Science + Research

Q&A: Understanding Bethlem Myopathy

Bethlem myopathy, also called Bethlem muscular dystrophy, is a rare disease affecting skeletal muscles and connective tissue. Considered a type of congenital muscular dystrophy, it was initially recognized in the…

Tags: Clinical Trials, Drug Development, Gene Therapy, Research, Research Advances, Spotlight


Featured Article | Independence, Personal Stories

Top 4 Reader Photos of 2022

Thank you to everybody who entered the 2022 Quest Reader Photo Contest. We received so many great photos from all around the neuromuscular disease community and are excited to share…

Tags: Lasting Impression, Parenting, Relationships


Featured Article | Independence, Personal Stories

Finding Creative Ways to Manage Accessibility Challenges

I was once on the go all the time, but in recent years, I have found myself slowing down and trying to pace myself. I do not push the limits…

Tags: Community, From Where I Sit


Featured Article | Advocacy, Lifestyle

When Will Air Travel for Passengers in Wheelchairs Get Better?

In September 2022, American Airlines stranded passenger Xavi Santiago for more than five hours at the Orlando airport after misplacing their power wheelchair. One month earlier, Lufthansa stopped Rhode Island…

Tags: Accessible Air Travel, Advocacy Updates, Thrive 365, Travel