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The MDA Ambassador Role & How to Become One
MDA Ambassadors are individuals affected by neuromuscular disease who share their story and help raise awareness, thus broadening the impact we make and bringing visibility to our mission. Beginning in…
Simply Stated: What is Becker Muscular Dystrophy?
Becker muscular dystrophy (BMD) is a rare genetic disorder involving mutations of the dystrophin gene. BMD exhibits similar signs and symptoms to another condition, Duchenne muscular dystrophy (DMD), which is…
Self-Care for the New Year
When psychotherapist and disability advocate, Lauren Presutti, needs to recenter with a little self-care, she focuses on taking the time to tune into her feelings. Lauren, who lives with congenital…
Tags: Caregiving, Mental Health
MDA Declares 2022 The Year of Independence
For more than 70 years, the Muscular Dystrophy Association (MDA) has been committed to empowering people living with muscular dystrophy, ALS, and related neuromuscular diseases to reach their potential. Through…
Reflecting on our 2021 Advocacy Accomplishments
2021 was another challenging year for many, but once again, MDA’s grassroots advocates were relentless in ensuring lawmakers heard their voices. Throughout the year, our volunteers emailed, called, and met…
FDA Approves argenx’s Vyvgart for Treatment of gMG
On Dec. 17, the US Food and Drug Administration (FDA) granted approval to efgartigimod (Vyvgart) for the treatment of generalized myasthenia gravis (gMG) in adults who test positive for the…
Tags: Clinical Trials, Drug Approval, Drug Development, Healthcare, Innovation, Research, Research Advances
Alcohol and Neuromuscular Disease
It’s no secret that alcohol consumption can have an impact on one’s health. Some studies have shown benefits for the heart and circulatory system from moderate drinking. On the other…
Tags: Healthcare, MDA Care Center, Nutrition
Connecting With Our Young Adults
Here at MDA, we are working to ensure all contact information is up-to-date for those who are registered in order to serve you as well as we possibly can. If…
Tags: College, Education, Let's Play, MDA Care Centers, MDA Resource Center, Mental Health, Resources, Transportation, Young Adults
The Latest on Mitochondrial DNA Depletion Deletion Syndrome
Michio Hirano, MD (fourth from right), and his research team gather with the Coiculescu family, whose sons received an experimental treatment for TK2 deficient myopathy through a compassionate use study.…
Tags: Gene Therapy, Healthcare, Innovation, Research, Spotlight
Mental Health Is for Everyone
Erasing stigma and finding support for mental health