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What You Need to Know About Finding and Visiting an MDA Care Center
Located at more than 150 of the top healthcare institutions across the United States, MDA Care Centers serve as the nexus for expert clinical care and medical research. Our Care…
Tags: Healthcare, MDA Care Centers, Resources
Clinical Trial Alert: Phase 2/3 Study of Tideglusib (AMO-02) in Children and Adolescents with Congenital Myotonic Dystrophy
Researchers at AMO Pharma Ltd are seeking children and adolescents living with congenital myotonic dystrophy (DM1), also known as Steinert disease, to participate in a phase 2/3 clinical trial (REACH…
Clinical Trial Alert: Early Phase Study of SRP-9001 in Boys with DMD
Researchers at Stanford Neuroscience Health Center are seeking 3-year-old boys living with Duchenne muscular dystrophy (DMD), particularly in California, to participate in an early phase clinical trial (a new cohort of…
Muscular Dystrophy Association Awards 18 Grants Totaling Over $1.6 Million for Neuromuscular Disease Research
On Oct. 28, 2021 the Muscular Dystrophy Association (MDA) announced the awarding of 18 new grants totaling over $1.6 million toward neuromuscular disease (NMD) research. These new grants represent a…
It’s Open Enrollment Season. Here’s what you need to know!
Open enrollment — the period each year when people are eligible to purchase new insurance or make changes to their existing insurance plans — is upon us. Buying health insurance…
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Talking About Your Child’s Diagnosis Helps Build Your Support System
When Stephanie and Wayne Donato received the diagnosis of Duchenne muscular dystrophy (DMD) for their son Maximus, who was 4 at the time, in 2017, “we were completely blindsided,” Stephanie…
Tags: Parenting, Relationships, Resources
Tips for Setting Up an Accessible Home Office
When the COVID-19 pandemic emerged in March 2020, Matthew Lawson’s employer — like many others around the country — temporarily closed its doors and had team members go remote to…
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MDA Helps Students and Teachers Achieve Success Together
It can be overwhelming for educators to learn the various challenges associated with neuromuscular diseases and to take those considerations into the classroom. The good news is that these students…
Why You’re Not Addressing Vaccine Concerns (And What You Can Do About It)
Vaccines have been protecting Americans from dangerous contagious diseases for decades and people who live with neuromuscular disease are more likely to develop severe illness from a COVID-19 exposure. Learn…
Tags: COVID-19, Featured Content, Healthcare
Research Study Alert: Observational Study of Clinical and Electrophysiological Outcomes in Adults with CMT
Researchers at Ohio State University are seeking adults living with Charcot-Marie-Tooth disease type 1 (CMT-1) and type 2 (CMT-2) to participate in a one-month observational study (CMT Establish). This study is…