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Beginning in mid-July 2021, Biogen is opening part 1 of its early access program for the investigational therapy tofersen to individuals with amyotrophic lateral sclerosis (ALS) caused by mutation of the superoxide…

Researchers at The Neurological Institute, PA, located in Charlotte, North Carolina, are seeking adults living with generalized myasthenia gravis (gMG) to participate in a phase 3 clinical trial to evaluate efficacy…

When MDA launched the MDA Peer Connections program last year, there was no doubt it would be invaluable for fostering relationships, especially during the pandemic.  It didn’t take long to…

Nyheim Hines, center, stands with, from left, his sister, Nyah; his mother, Nannette; and his father, Darrin. For Nyheim Hines, MDA’s 2021 spokesperson, supporting the mission is personal

Clinical trials come with great hope and also great unknowns. Here’s how to weigh all the factors and make the best choice for yourself and your family.

Researchers at IONIS Pharmaceuticals are seeking individuals living with amyotrophic lateral sclerosis (ALS) with fused in sarcoma mutations (FUS-ALS) to participate in a phase 3 clinical trial to determine the efficacy…

The Resource Center answers readers’ questions

Follow these tips to gather the tools and support you need to live well

Viral vectors are an important area of research in the exciting field of gene-targeted therapies

A Q&A with Tahseen Mozaffar, MD