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When Kristine Welker’s son was young, he wanted to be as involved in sports as everyone else in the family — and that meant a high level of activity, from…

Clinical trials come with great hope and also great unknowns. Here’s how to weigh all the factors and make the best choice for yourself and your family.

Follow these tips to gather the tools and support you need to live well

Viral vectors are an important area of research in the exciting field of gene-targeted therapies

Hunt family Coping skills to help you handle stress when raising a child with neuromuscular disease

Josh Corbett[Image description: Josh, a light-skinned boy with short brown hair, stands in front of a brick wall wearing a black jacket, gray shirt, red shorts, and blue sneakers.]  …

Researchers at Mitsubishi Tanabe Pharmaceutical America (MTPA) are seeking individuals living with amyotrophic lateral sclerosis (ALS) to participate in a six-month observational study. This study is designed to identify biomarkers to serve…

Financial tools and savings options help individuals and families living with neuromuscular disease achieve their goals

Mindy Henderson Our biggest challenges can be our greatest advantages

Researchers at the University of Pittsburgh invite parents and guardians of children with Duchenne muscular dystrophy (DMD) to participate in a study that investigates whether they utilize mental health resources and…