Archives
Are Vaccines Safe
Vaccines recommended by the CDC, including new COVID-19 vaccines, are safe for those with neuromuscular disease. Here’s what you need to know.
Tags: COVID-19, Healthcare, Web Exclusive
Clinical Trial Alert: Phase 3 Study of Zilucoplan in Individuals With Generalized Myasthenia Gravis
Researchers at Ra Pharmaceuticals (now part of UCB BioSciences) are seeking individuals living with generalized myasthenia gravis (gMG) to participate in a phase 3 study to confirm safety, tolerability, and efficacy…
FDA Approves Sarepta Therapeutics’ Amondys 45 for Treatment of DMD Amenable to Skipping Exon 45
On Feb. 25, the US Food and Drug Administration (FDA) granted accelerated approval to casimersen (Amondys 45) for the treatment of Duchenne muscular dystrophy (DMD) in patients amenable to skipping exon…
Clinical Trial Alert: Phase 3 Study of Rozanolixizumab in Individuals With Generalized Myasthenia Gravis
Researchers at UCB BioSciences are seeking individuals living with generalized myasthenia gravis (gMG) to participate in a phase 3 study. The objective of the study is to confirm the clinical efficacy…
Plan for a Bright Future
Financial tools and savings options help individuals and families living with neuromuscular disease achieve their goals
Tags: Education, Employment, Featured Content, Finance, Insurance, Parenting, Resources, Transitions, Young Adults
New Research Channels for Myotonia Congenita
A Q&A with Mark Rich, MD, PhD
Tags: Grants, Healthcare, Research, Research Advances, Resources, Spotlight
Disability or Superpower
Mindy Henderson Our biggest challenges can be our greatest advantages
Tags: College, Education, Employment, From Where I Sit
Creativity and Adaptability
Members of the neuromuscular disease community draw on innovating skills to cope with the financial impacts of the pandemic
Tags: COVID-19, Education, Employment, Healthcare, Insurance, Relationships, Resources, Web Exclusive
Affordable Accessibility at Home or On the Go
Wondering how you can manage home or vehicle modifications? Start with these steps
Tags: Featured Content, Finance, Resources, Travel
MDA Welcomes Dr. Don Wood as its New President and CEO
Steve Jobs said, “The only way to do great work is to love what you do.” And MDA’s new president and CEO, Donald S. Wood, PhD, surely loves what he…
Tags: MDA Leadership, Research