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Jon Burcaw, an MDA supporter through Ride for Life, and his son, Shane Burcaw, an MDA summer-camper-turned-influencer, share their thoughts.

Our MDA Volunteer Committee shares what volunteering means to them, as we thank them on National Volunteer Recognition Day.

An observational trial in individuals with Becker muscular dystrophy (BMD) in under way to assess functional measures and imaging endpoints. 

In addition to being fun, participating in adaptive sports has other benefits for those with physical disabilities.

Improvements are needed to increase diversity in rare disease clinical trials and research in the United States.

Researchers announce positive results from study of corticosteroid dosing regimens for people with Duchenne muscular dystrophy (DMD).

Researchers are seeking people living with muscular dystrophy (MD) and their caregivers for a survey about their quality of life.

Researchers are seeking adults living with generalized myasthenia gravis (gMG) for clinical trial to evaluate investigational drug ALXN2050.

Researchers are seeking adults living with dermatomyositis to participate in a clinical trial for the investigational drug ravulizumab.

MDA celebrates National Volunteer Month by thanking our volunteers who work tirelessly to support MDA’s mission and the families we serve.