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Simply Stated: Inclusion Body Myositis, Revisited
New understanding of inclusion body myositis (IBM) a rare, progressive muscle disease with chronic muscle inflammation and weakness.
Father-Son Contribution to the 35th Annual Ride for Life
Jon Burcaw, an MDA supporter through Ride for Life, and his son, Shane Burcaw, an MDA summer-camper-turned-influencer, share their thoughts.
MDA Recognizes the Esteemed Members of Our Volunteer Advisory Committee
Our MDA Volunteer Committee shares what volunteering means to them, as we thank them on National Volunteer Recognition Day.
Tags: Community, Fundraising, Volunteers
Natural History Trial of BMD Now Enrolling
An observational trial in individuals with Becker muscular dystrophy (BMD) in under way to assess functional measures and imaging endpoints.Β
Tags: Healthcare, Innovation, Research Study Alert
Adaptive Sports Offer Benefits for All Ages
In addition to being fun, participating in adaptive sports has other benefits for those with physical disabilities.
Tags: Community, Leah, Staying Active, Young Adults
Promoting Diversity in Rare Disease Research
Improvements are needed to increase diversity in rare disease clinical trials and research in the United States.
Tags: Clinical Trials, Community, Healthcare, Innovation, Research
Researchers Announce Results from a Phase 3 Study of Corticosteroid Dosing to Treat DMD
Researchers announce positive results from study of corticosteroid dosing regimens for people with Duchenne muscular dystrophy (DMD).
Tags: Research Advances
Research Study Alert: Survey for People with Muscular Dystrophy and Their Caregivers about Quality of Life
Researchers areΒ seeking people living with muscular dystrophy (MD) and their caregivers for a survey about their quality of life.
Tags: Caregiving, Research Study Alert
Clinical Trial Alert: Phase 2 Study of ALXN2050 in Adults Living with gMG
Researchers areΒ seeking adults living with generalized myasthenia gravis (gMG) for clinical trial to evaluate investigational drug ALXN2050.
Clinical Trial Alert: Phase 2 Study of Ravulizumab (Ultomiris) in Adults Living with Dermatomyositis
Researchers areΒ seeking adults living with dermatomyositis to participate in a clinical trial for the investigational drug ravulizumab.