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A New Direction for Charcot-Marie-Tooth Disease
To learn more about Charcot-Marie Tooth, we speak with Stephan Zuchner, MD, PhD, a professor and chair of the department of Human Genetics at the University of Miami.
Leading the Quest for Change
For years, MDA has worked to empower people living with muscular dystrophy, ALS, and related neuromuscular diseases to reach their fullest potential. And while strides have been made through innovations…
The Hidden Benefits of Volunteering
Helping others can help you build valuable skills Blaine, a 6-year-old black lab, is assistance dog extraordinaire to Bella Andrade, 19, who lives with spinal muscular atrophy (SMA) and uses…
Tags: Community, Education, Employment, Resources, Thrive 365, Volunteers
Life at the Intersection of Disability and LGBTQ
Despite the challenges of navigating the intersectionality of disability and being LGBTQ, being part of the latter community brings an additional level of support for some people.
Tags: Community, Relationships, Resources, Transitions, Young Adults
International Day of Women and Girls in Science: MDA’s Spotlight on Dr. Angela Lek
In recognition of International Day of Women and Girls in Science, the MDA is honored to highlight the career and accomplishments of Dr. Angela Lek, PhD.
Tags: College, Employment, Innovation, Research, Year of Independence
Year in Review: MDA Family Support Team Services and Programming
MDA’s Family Support Team executes a variety of programs that empower individuals and families on their journeys.
Tags: Community, Healthcare, MDA Care Centers, MDA Resource Center, National Connections Program, Resources
Welcoming the 2022 MDA National Ambassadors
MDA’s Ambassadors are pivotal to our mission: empowering people living with muscular dystrophy, ALS, and related neuromuscular diseases to achieve their potential. We do that through care, research, and advocacy. Because the…
Tags: Ambassadors, Amy, Volunteers
MDA’s 2022 Advocacy Agenda
It’s a new year and MDA’s commitment to transforming the lives of people living with neuromuscular disease through advocacy remains a top priority. We accomplished a lot last year, but…
Quest for Success: Alexa Dectis
As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to kick off our 2022 blog series: “Quest for Success”. Success…
It Helps to Have a Friend Who Understands Your Neuromuscular Disease
For the first six months following her amyotrophic lateral sclerosis (ALS) diagnosis, Valerie Geerer’s instinct was to keep the news to herself. “My husband and close family and friends knew,…