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Nyheim Hines, center, stands with, from left, his sister, Nyah; his mother, Nannette; and his father, Darrin. For Nyheim Hines, MDA’s 2021 spokesperson, supporting the mission is personal

Clinical trials come with great hope and also great unknowns. Here’s how to weigh all the factors and make the best choice for yourself and your family.

Researchers at IONIS Pharmaceuticals are seeking individuals living with amyotrophic lateral sclerosis (ALS) with fused in sarcoma mutations (FUS-ALS) to participate in a phase 3 clinical trial to determine the efficacy…

The Resource Center answers readers’ questions

Follow these tips to gather the tools and support you need to live well

Viral vectors are an important area of research in the exciting field of gene-targeted therapies

A Q&A with Tahseen Mozaffar, MD

MDA Care Centers strive to expand access to quality care

Chelsea Moeller and her mother, Laura, both participated in the phase 2b Fulcrum ReDUX4 clinical trial last year. My experience participating in an FSHD clinical trial

May is Amyotrophic Lateral Sclerosis (ALS) Awareness Month, and while this past year was different — given the global pandemic we all endured — the research and support for finding new treatments…