Archives
Quest for Success: Jax Cowles
As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. Success looks…
More Than Just Fun & Games – Charlie Mabry is Streaming for a Cause
Charlie Mabry, a video game streamer known as CharlieHarley_1 to his growing base of followers on TikTok and Twitch, is using his passion for video games to build a community…
Tags: Ambassadors, Community, Fundraising, Let's Play, Staying Active
Current State of SMA Therapy: Navigating Treatment Options
Over the past five years, medical and scientific advances have increased overall health and life expectancy in people with the neuromuscular disease (NMD) spinal muscular atrophy (SMA). SMA causes progressive…
Tags: Healthcare, Resources
1st Annual Hayes Festival and Motorcycle Rally Unites Southeastern Wisconsin in Support of MDA
On September 23, 2022, Hayes Performance Systems in Mequon, WI, will be hosting its First Annual Hayes Festival and Motorcycle Rally in support of the Muscular Dystrophy Association (MDA). Hayes…
Tags: Ambassadors, Community, Fundraising
Looking for Answers on Exercise
Our knowledge of how physical activity benefits people with neuromuscular diseases is growing.
Tags: Featured Content, MOVR, Research, Staying Active
8 Stylish Adaptive Products Perfect for Back-to-School Season
When you look good, you feel good. That maxim is true at every age, from the preschooler who insists on wearing their superhero cape everywhere to the college student sporting…
Tags: Education, Thrive 365, Young Adults
5 Ways to Manage Back-to-School Stress
The start of a new school year can be stressful for the whole family, especially when juggling healthcare appointments, IEP plan meetings, school supply shopping, and assembling a back-to-school wardrobe.…
Tags: Amy, Featured Content, Mental Health, Web Exclusive
Research Grants Create a Path to Progress
MDA plays a crucial role in funding research to develop new treatments for neuromuscular diseases.
Tags: Antisense Oligonucleotide, Exon Skipping, Featured Content, Grants, Innovation, Research, Research Advances
Who You Gonna Call?
A 9-year-old with muscular dystrophy receives a Ghostbusters wheelchair from MDA and Magic Wheelchair.
Tags: Fill the Boot, Lasting Impression
Ask the Resource Center: IEPs and DMD in Women
Q: My son has an individualized education program (IEP) and is in a school that does not meet his needs. What equipment and services should the school provide? — Enis,…
Tags: Education, Genetic Testing, Healthcare, MDA Care Centers, MDA Q and A, MDA Resource Center, Resources