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Researchers at Immunovant are seeking adults who have mild to severe generalized myasthenia gravis (MG) to participate in a phase 3 clinical trial (FLEX) to evaluate the safety and efficacy of…

As many employers recognize the benefit of volunteerism, more and more companies are beginning to offer Volunteer Time Off (VTO) programs. VTO programs offer employees the opportunity take time off…

Periodic paralysis (PP) is a rare genetic condition that causes sudden, temporary episodes of muscle weakness, stiffness, or paralysis (inability to move). These episodes may affect the whole body or…

Researchers at University of Delaware are seeking children living with Becker muscular dystrophy (BMD) or Duchenne muscular dystrophy (DMD) to participate in a study designed to determine the effects of BMD…

“Don’t hope for a miracle. Make one,” is the powerful tag line from Extraordinary Measures a 2010 drama film starring Brendan Fraser, Harrison Ford, and Keri Russell. The movie is…

In this Quest Podcast episode, we chat with a renowned journalist, model and disability rights activist, who lives with physical disabilities. Madison Lawson, who has been featured in publications including…

Genetic counselors help individuals and families understand genetic testing and empower them to make decisions about their health.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

It might be an off-year election, but many states and localities are still holding important contests that can shape policy in your area. Therefore, it’s important that your voice is…

Awareness is spreading that women and girls can have Duchenne muscular dystrophy symptoms, but there’s more work to do.