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Blog Post | Health, Science + Research

Clinical Trial Alert: Phase 3 Study of Batoclimab in Adults with MG

Researchers at Immunovant are seeking adults who have mild to severe generalized myasthenia gravis (MG) to participate in a phase 3 clinical trial (FLEX) to evaluate the safety and efficacy of…

Tags: Clinical Trial Alert, Clinical Trials, Drug Development, Healthcare, Innovation, Research, Research Advances


Blog Post | Lifestyle

Company Volunteer Time Off Programs Benefit Everyone

As many employers recognize the benefit of volunteerism, more and more companies are beginning to offer Volunteer Time Off (VTO) programs. VTO programs offer employees the opportunity take time off…

Tags: Community, Employment, Volunteers, Year of the Volunteer


Blog Post | Finding a Diagnosis, Health, Science + Research

Simply Stated: Research Updates in Periodic Paralysis

Periodic paralysis (PP) is a rare genetic condition that causes sudden, temporary episodes of muscle weakness, stiffness, or paralysis (inability to move). These episodes may affect the whole body or…

Tags: Healthcare, Innovation, MDA Resource Center, Research, Research Advances, Resources, Simply Stated


Blog Post | Health, Science + Research

Research Study Alert: Observational Study of Cardiovascular Function in Children with BMD or DMD

Researchers at University of Delaware are seeking children living with Becker muscular dystrophy (BMD) or Duchenne muscular dystrophy (DMD) to participate in a study designed to determine the effects of BMD…

Tags: Healthcare, Innovation, Research, Research Advances, Research Study Alert


Blog Post | Health, Science + Research

New Therapy Brings Hope for Late-Onset Pompe Disease

“Don’t hope for a miracle. Make one,” is the powerful tag line from Extraordinary Measures a 2010 drama film starring Brendan Fraser, Harrison Ford, and Keri Russell. The movie is…

Tags: Drug Development, Healthcare, Innovation, Research, Research Advances


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Episode 33- Wheelchair Barbie Talks Advocacy and Inclusion

In this Quest Podcast episode, we chat with a renowned journalist, model and disability rights activist, who lives with physical disabilities. Madison Lawson, who has been featured in publications including…

Tags: Community, Relationships, Staying Active, Young Adults


Blog Post | Finding a Diagnosis, Health, Science + Research

What Do Genetic Counselors Do?

Genetic counselors help individuals and families understand genetic testing and empower them to make decisions about their health.

Tags: Featured Content, Genetic Testing, Healthcare, Insurance, MDA Care Centers


Blog Post | Independence, Lifestyle

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: In Case You Missed It


Blog Post | Advocacy, Get Involved

Get Prepared for Election Season

It might be an off-year election, but many states and localities are still holding important contests that can shape policy in your area. Therefore, it’s important that your voice is…

Tags: Advocacy Updates


Blog Post | Finding a Diagnosis, Health, Science + Research

Can Women and Girls Have Duchenne Muscular Dystrophy?

Awareness is spreading that women and girls can have Duchenne muscular dystrophy symptoms, but there’s more work to do.

Tags: Featured Content, Genetic Testing, Healthcare, Research, Young Adults