Archives
Hiring Good PCAs
Living as an adult with a disability means trusting other people to assist you with daily tasks, some of which are intimate or make you feel vulnerable. How you approach…
MDA Tribute Tour Takes Houston: A “Family Reunion” to Remember
Thursday night, June 2, 2022, individuals from the Muscular Dystrophy Association (MDA), along with local volunteers, MDA families and MDA partners descended on Hotel ZaZa in Memorial City, Houston, Texas…
Book Launch Day – The Truth About Things That Suck
The Muscular Dystrophy Association, and the neuromuscular disease community has been a part of my extended family my entire life. And so today, on one of the biggest days of…
Eledon Announces Positive Topline Results from a Phase 2a Study of Tegoprubart to Treat ALS
On May 31, Eledon announced positive topline results from its Phase 2a clinical trial of the investigational therapy tegoprubart (formerly AT-1501) for treatment of amyotrophic lateral sclerosis (ALS).
Preparing for Your MDA Care Center Visit
Preparing for your MDA Care Center visit can ensure that all of your questions regarding your or your loved one’s care plan are answered.
Tags: Healthcare, MDA Care Centers
Simply Stated: What is Friedreich’s Ataxia (FRDA)?
Friedreich’s ataxia (FRDA) is an inherited neuromuscular disease that primarily impacts the nervous system and heart and affects about one in 50,000 people worldwide.
Tags: Healthcare, Innovation, Research, Simply Stated
Quest for Success: Brian Chao
Brian Chao, CFO of Starkloff Disability Institute’s, discusses the importance of empowering and preparing individuals with disabilities in the workforce.
MDA Chicago Muscle Walk MC Billy Z is Changing the World One Slice at a Time
Eight years ago, if you were looking for Billy Zureikat you would find him on the basketball court. The 38-year-old, former ESPN producer and current logistics manager’s passion was on…
Tags: Community, Fundraising, Muscle Walk
Research Study Alert: Track-ALS Study of Home-Based Digital Monitoring to Assess ALS Progression
Researchers seek adults living with ALS for research study assessing if measurements collected at home can help track disease progression.
Tags: Research, Research Study Alert
Clinical Trial Alert: Phase 3 Study of investigational drug in Adults Living with ALS
Researchers seek adults living with ALS to participate in clinical trial to evaluate the safety and effectiveness of investigational drug.