Archives
2022 Clinical & Scientific Conference: March 16 Highlights
On the last day of 2022 MDA’s Clinical & Scientific Conference, the theme is clinical trials in neuromuscular disease (NMD).
Tags: Clinical Trials, Drug Development, Exon Skipping, Healthcare, Innovation, MDA Clinical and Scientific Conference
2022 Clinical & Scientific Conference March 15 Highlights
The three major themes of the second day of MDA’s Clinical & Scientific Conference sessions were (1) therapeutic strategies to treat NMDs, (2) clinical trial design and implementation, and (3)…
2022 Clinical & Scientific Conference March 14 Highlights
A recap and highlights from the first full day of sessions at MDA’s 2022 Clinical & Scientific Conference.
Clinical Trial Alert: Phase 1b/2a Study of WVE-N531 in a Subset of People Living with DMD
Researchers are seeking boys living with DMD caused by gene mutations amenable to exon 53 skipping interventions to participate in a clinical trial.
Staying Connected with MDA
To stay connected with MDA Care Specialists and receive the latest updates on MDA news and events, it is important that you ensure that your contact information is up to…
MDA Summer Camp: Zach’s Note to Younger Self
In a note to his younger self, Zach Jorgenson shares how his experience at MDA Summer Camp impacted his life.
Tags: Relationships, Staying Active, Summer Camp, Volunteers
Quest for Success: Nicole Lahoud
Nicole Lahoud, a high school teacher, offers unique insight into the value of structuring a classroom to meet the needs of everyone.
Tags: College, Education, Employment, Healthcare, Parenting, Personal Care Attendants, Quest for Success, Resources, Year of Independence
Ensuring Economic Independence for the Neuromuscular Community
Creating true economic independence is part of a new MDA advocacy initiative called Ensuring Economic Independence.
Research Study Alert: Survey of Pain Self-Management and Well-Being in People with General Pain or with Myotonic Dystrophy
Researchers at Newcastle University are seeking adults living with general pain or with myotonic dystrophy (DM) to participate in a survey.
Tags: Research Study Alert
View From the Top
Hiker Skye Lemmen raised funds for MDA while trekking the Pacific Crest Trail When Skye Lemmen, of Grand Rapids, Michigan, decided to hike the Pacific Crest Trail, she knew she…