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Blog Post | Science + Research

2022 Clinical & Scientific Conference: March 16 Highlights

On the last day of 2022 MDA’s Clinical & Scientific Conference, the theme is clinical trials in neuromuscular disease (NMD).

Tags: Clinical Trials, Drug Development, Exon Skipping, Healthcare, Innovation, MDA Clinical and Scientific Conference


Blog Post | Science + Research

2022 Clinical & Scientific Conference March 15 Highlights

The three major themes of the second day of MDA’s Clinical & Scientific Conference sessions were (1) therapeutic strategies to treat NMDs, (2) clinical trial design and implementation, and (3)…

Tags: Healthcare, Innovation, MDA Clinical and Scientific Conference, Research


Blog Post | Science + Research

2022 Clinical & Scientific Conference March 14 Highlights

A recap and highlights from the first full day of sessions at MDA’s 2022 Clinical & Scientific Conference.

Tags: Amy, Healthcare, Innovation, MDA Clinical and Scientific Conference, Research


Blog Post | Science + Research

Clinical Trial Alert: Phase 1b/2a Study of WVE-N531 in a Subset of People Living with DMD

Researchers are seeking boys living with DMD caused by gene mutations amenable to exon 53 skipping interventions to participate in a clinical trial.

Tags: Clinical Trial Alert, Exon Skipping, Healthcare, Innovation, Research


Blog Post | Finding a Diagnosis, Independence

Staying Connected with MDA

To stay connected with MDA Care Specialists and receive the latest updates on MDA news and events, it is important that you ensure that your contact information is up to…

Tags: Healthcare, MDA Care Centers, MDA Resource Center


Blog Post | Personal Stories

MDA Summer Camp: Zach’s Note to Younger Self

In a note to his younger self, Zach Jorgenson shares how his experience at MDA Summer Camp impacted his life.

Tags: Relationships, Staying Active, Summer Camp, Volunteers


Blog Post | Personal Stories

Quest for Success: Nicole Lahoud

Nicole Lahoud, a high school teacher, offers unique insight into the value of structuring a classroom to meet the needs of everyone.

Tags: College, Education, Employment, Healthcare, Parenting, Personal Care Attendants, Quest for Success, Resources, Year of Independence


Blog Post | Advocacy

Ensuring Economic Independence for the Neuromuscular Community

Creating true economic independence is part of a new MDA advocacy initiative called Ensuring Economic Independence.

Tags: Advocacy Updates, Employment, Resources, Year of Independence


Blog Post | Science + Research

Research Study Alert: Survey of Pain Self-Management and Well-Being in People with General Pain or with Myotonic Dystrophy

Researchers at Newcastle University are seeking adults living with general pain or with myotonic dystrophy (DM) to participate in a survey.

Tags: Research Study Alert


Featured Article | Lifestyle

View From the Top

Hiker Skye Lemmen raised funds for MDA while trekking the Pacific Crest Trail When Skye Lemmen, of Grand Rapids, Michigan, decided to hike the Pacific Crest Trail, she knew she…

Tags: Community, Featured Content, Fundraising, Lasting Impression, Relationships