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Two independent research teams have identified a mutation in the gene for chromosome 9 open reading frame 72 (C9ORF72) as the most common cause found to date of familial ALS (amyotrophic lateral sclerosis),frontotemporal dementia (FTD)…

After two years of laying the groundwork, the Agency for Toxic Substances and Disease Registry (ATSDR) has opened its National ALS Registry to collect information from people living with ALS. Scientists…

Motor neurons are lost in ALS, but new evidence shows they don’t die without significant help from their neighboring cells. These neighbors may be easier to target with therapies than…

When ALS weakened Jane Cheng’s mother, her caregivers found it took a great deal of strength to help her transfer on and off the toilet. “I twisted my ankle a few times…

“Toxic desert dust” may be why military personnel serving in the 1990-1991 Gulf War experienced abnormally high rates of ALS, new findings suggest.

Recently, media outlets reported a possible link between developing ALS and living near Lake Mascoma in Western New Hampshire. The Union Leader in New Hampshire and other news outlets indicated that the…

When ALS-affected nerve cells lose function, their closest neighbors can’t protect them.

Some students with muscle diseases have IEPs (Individualized Education Plans) and some have 504 plans. What’s the difference? Should parents be concerned if the school says their child doesn’t qualify for an…

Once upon a time, there was a young woman named Goldilocks. She went to visit her MDA clinic for an appointment with a respiratory therapist (RT) because her doctor said she needed…

A triple option for ambulation