Archives




Blog Post | Advocacy, Get Involved, Independence, Lifestyle, Personal Stories

MDA National Ambassador Blog- Embracing the Power of Giving and Gratitude: Ira’s Journey with MDA

As the holiday season approaches, we are reminded of the spirit of giving and the importance of gratitude. It is a time when we come together to support organizations that…

Tags: Community, Healthcare, Innovation, Insights by Ira, Ira, MDA Care Centers, Research, Resources, Summer Camp, Young Adults


Blog Post | Independence, Lifestyle, News

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: College, Community, Drug Approval, Education, In Case You Missed It


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Why I am Grateful for My Caregivers

Jennifer Cruz and her mother Jennifer Cruz is 36 years old and lives in Broken Arrow, OK. Jennifer has Ullrich congenital muscular dystrophy and uses a wheelchair and noninvasive ventilation.…

Tags: Accessible Air Travel, Ambassador Guest Blog, Ambassadors, Caregiving, Relationships


Blog Post | Health, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: A Veteran’s Journey

Marshall Eckert in the Air Force Marshall Eckert currently resides in Virginia, just outside the capital, and navigates life with Limb-Girdle Muscular Dystrophy Type 2B. He is a proud alumnus…

Tags: Ambassador Guest Blog, Ambassadors


Blog Post | Get Involved, Lifestyle

MDA Volunteers Find Career Inspirations at Summer Camp

MDA Summer Camp creates opportunities for youth living with neuromuscular disease to gain confidence, increase communication skills, try new things, tackle challenges, and dream big. It is a truly unique…

Tags: Career Quest, Community, Summer Camp, Volunteers, Year of the Volunteer


Blog Post | Health, News, Science + Research

AGAMREE ® (Vamorolone), Now FDA-Approved, Offers Hope for Children Living with Duchenne Muscular Dystrophy

The recent FDA approval of Catalyst’s AGAMREE ® (vamorolone) is a beacon of hope for people living with Duchenne muscular dystrophy (DMD), a rare but serious degenerative muscle disease.   According…

Tags: Drug Approval, Drug Development, Healthcare, Innovation, Research Advances


Blog Post | Inclusion, Lifestyle

Comcast is Taking Accessibility to the Next Level

Comcast’s Accessibility team is raising the bar when it comes to inclusive design and accessible products and services. With a focus on customer-facing experiences, from remote controls to customer service…

Tags: Community, Innovation


Blog Post | Lifestyle

Fun & Easy DIY Wheelchair Costume Ideas for Halloween

Each year, MDA and Magic Wheelchair team up for a special sweepstakes where one lucky contestant wins an incredible, custom costume that transforms their wheelchair and provides a magical opportunity…

Tags: Community, Parenting


Blog Post | Advocacy, Get Involved, Independence, Lifestyle, Personal Stories

Episode 34- Job Searching, Interviewing, and Employment with a Disability

In this Quest Podcast episode, we chat with a distinguished business leader from the St. Louis area, who lives with physical disabilities. Lori Becker, CEO of Starkloff Disability Institute, has…

Tags: College, Community, Education, Transitions, Young Adults


Blog Post | Health, Lifestyle

Coping with Family Caregiver Fatigue

Tips for family caregivers to recognize the signs of caregiver burnout and manage stress to prevent it.

Tags: Caregiving, Community, Featured Content, Mental Health, Relationships