Archives
One Bike Four Stories
Chris Benyo With the help of Team Momentum, a racing wheelchair connected and impacted multiple MDA families
Living Creatively
Releasing my first album took a lifetime of imagination and determination
Help Wanted
Finding accessible employment in the work-from-home era
Education Within Reach
Access Workshop helps families overcome barriers to school
Tags: Access MDA, Education, Parenting
Creating Awareness
Educating others about disability can be a heavy lift, but advocates in our community say it’s worth the effort
Advocating Against Ableism
These advocates have learned to recognize and call out ableism where they see it
Tags: Spotlight, Web Exclusive, Young Adults
Clinical Trial Alert: Phase 2 Study of Ifetroban in Individuals with DMD
Researchers at Cumberland Pharmaceuticals Inc. are seeking boys and men living with Duchenne muscular dystrophy (DMD) to participate in a phase 2 clinical trial to evaluate the safety, efficacy, and duration…
Clinical Trial Alert: Phase 2/3 and Open-Label Extension Study of ASP0367 in Individuals with Primary Mitochondrial Myopathy
Researchers at Astellas Pharma Inc. are seeking individuals living with primary mitochondrial myopathy (PMM) to participate in a phase 2/3 clinical trial and open-label extension to evaluate safety, tolerability and preliminary…
FDA Approves Sanofi Genzyme’s Nexviazyme for Treatment of Pompe Disease
On Aug. 6, the US Food and Drug Administration (FDA) granted accelerated marketing approval to avalglucosidase alfa (Nexviazyme) for the treatment of people 1 year of age and older living…
Tags: Drug Approval, Healthcare, Research, Research Advances
Dreaming of a good night’s sleep?
More than one-third of adults in the United States fail to get the seven to nine hours of sleep they need, reports the National Sleep Foundation. Children and teens require…
Tags: Healthcare