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Featured Article | Personal Stories

One Bike Four Stories

Chris Benyo With the help of Team Momentum, a racing wheelchair connected and impacted multiple MDA families

Tags: Fundraising, Lasting Impression, Staying Active, Team Momentum


Featured Article | Independence, Personal Stories

Living Creatively

Releasing my first album took a lifetime of imagination and determination

Tags: Education, Employment, From Where I Sit, Year of Independence


Featured Article | Advocacy, Independence, Lifestyle

Help Wanted

Finding accessible employment in the work-from-home era

Tags: Employment, Featured Content, Resources, Technology, Year of Independence


Featured Article | Independence

Education Within Reach

Access Workshop helps families overcome barriers to school

Tags: Access MDA, Education, Parenting


Featured Article | Advocacy, Inclusion

Creating Awareness

Educating others about disability can be a heavy lift, but advocates in our community say it’s worth the effort

Tags: Featured Content, Mental Health, Relationships


Featured Article | Advocacy, Inclusion

Advocating Against Ableism

These advocates have learned to recognize and call out ableism where they see it

Tags: Spotlight, Web Exclusive, Young Adults


Blog Post | News, Science + Research

Clinical Trial Alert: Phase 2 Study of Ifetroban in Individuals with DMD

Researchers at Cumberland Pharmaceuticals Inc. are seeking boys and men living with Duchenne muscular dystrophy (DMD) to participate in a phase 2 clinical trial to evaluate the safety, efficacy, and duration…

Tags: Clinical Trial Alert, Clinical Trials, Drug Development, Research


Blog Post | News, Science + Research

Clinical Trial Alert: Phase 2/3 and Open-Label Extension Study of ASP0367 in Individuals with Primary Mitochondrial Myopathy

Researchers at Astellas Pharma Inc. are seeking individuals living with primary mitochondrial myopathy (PMM) to participate in a phase 2/3 clinical trial and open-label extension to evaluate safety, tolerability and preliminary…

Tags: Clinical Trial Alert, Clinical Trials, Drug Development, Research


Blog Post | News, Science + Research

FDA Approves Sanofi Genzyme’s Nexviazyme for Treatment of Pompe Disease

On Aug. 6, the US Food and Drug Administration (FDA) granted accelerated marketing approval to avalglucosidase alfa (Nexviazyme) for the treatment of people 1 year of age and older living…

Tags: Drug Approval, Healthcare, Research, Research Advances


Blog Post | Health, Lifestyle

Dreaming of a good night’s sleep?

More than one-third of adults in the United States fail to get the seven to nine hours of sleep they need, reports the National Sleep Foundation. Children and teens require…

Tags: Healthcare